Are you willing to run a 5K for a good cause? If not, how about 300 feet, with a beer at the midpoint?
The Sisters’ Hope Foundation – a global organization based in Myerstown that advocates for people suffering from a rare disease called Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia, or ALSP – is hosting the annual ALSP Run ‘n’ Roll 5k for the Cure on Saturday, Nov. 2 at Lebanon Valley Craft Brewery.’
Read More: State House adopts Rep. Schlegel’s resolution on rare disease awareness
ALSP is a progressive, degenerative neurological disease that mimics Alzheimer’s, Parkinson’s, and multiple sclerosis, which affects individuals who are mostly between the ages of 30 and 50 years of age.
“The physical, emotional, and financial toll of this disease cannot be adequately described,” Heidi Edwards, president and founder of the foundation, said in an email. “Although it is rare, my community, your community, and communities all over the world are touched by this disease.”
According to marketing manager Jamie LaFleur, the pre-race party starts at 9 a.m., and the race begins at 10. LVCB will be serving breakfast from 9 to 11 a.m., LaFleur noted, and lunch after 11.
A 0.1K Beer Run, for those who are less athletically inclined, begins at noon. “Basically, participants will run 300 feet, stopping at the midway point to have a beer,” he explained.
Prizes will be awarded for top three male and female runners in the 5K, and all 5K participants will receive a t-shirt, medal and swag bag, LaFleur said. Beer Run participants will receive a sweatband and entry into a drawing to win an LVCB gift card.
There will also be live music for the event, featuring Addi Grace from 9 a.m. to noon and Johnny Phatt of Mr. Greengenes from noon to 3:30 p.m.
Register for the 5K or beer run online.
“Sisters’ Hope’s mission is to educate about this disease, to support patients and families living with ALSP, and to push for further research for better treatment options,” Edwards said in an email. “We have made great strides into the medical and research community in our 4 short years of operation. We will continue to raise our voice. But here is the larger vision. It is becoming clear as research develops that treatments for ALSP will be the key to unlocking treatments for other devastating neurological diseases such as Alzheimer’s, Parkinsons, and MS.”
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